Meet our Speakers

Adéla Odrihocká

Co-Chair, Ehler-Danlos syndrome andhypermobility syndrome Czech Republic / PatientAdvocate, Rare Diseases Czech Republic (ČAVO)

Prof. dr Arsen Ristić

Head of Heart Failure Ward and Ass. Director, Department of Cardiology of the University Clinical Center of Serbia, Vice-Dean for Postgraduate Studies, Faculty of Medicine, University of Belgrade, Board Member, Heart Failure Association of the European Society of Cardiology President, Pulmonary Hypertension Society of Serbia,

Dr Bojan Trkulja

Director, INOVIA

Dr Branka Rakić

Team lead for the AI for Healthcare & Life Science group

Cynthia J. Tifft, MD, PhD,

Deputy Clinical Director, NationalHuman Genome Research Institute Director, PediatricUndiagnosed Diseases Program, National Institutes ofHealth)

Dorica Dan

President, Romanian National Alliance for RareDiseases / Vice-President, EURORDIS

Dr Dragana Atanasijević

Public Health Specialist, MS health services management Head of Health Technology Assessment Department Center for Analysis, Planning and Organization of Health Care Institute of Public Health of Serbia "Dr Milan Jovanovic Batut"

Djordje Djordjevic

Founder in Residence, Deep ScienceVentures

Elin Haf Davies

CEO / Founder, Aparito

Emina Hadžihasanović

President, Association of Rare Disease Patients from Bosnia and Herzegovina

Eva Pasaro

Vice-President, UNIAMO - Federazione ItalianaMalattie Rare"

Prof. dr Gordana Vilotijević Dautović

Associate Professor, Facultyof Medicine, University of Novi Sad / Director, PeadiaticClinic, Institute for Child and Youth Health Care

Ivana Hrastar

Social Worker, Rare Diseases Croatia

Prof. dr Isidora Jarić

Full Professor, Faculty of Philosophy, University of Belgrade

Jana Sotirović

Patient Advocate, Cystic Fibrosis Association Serbia

Jordi Cruz

Director Spanish MPS-Lysosomal Association and Founder of the La Casa de Sofía Center

Julian Delaye

Patient Engagement Manager - HTA,EURORDIS / Rare2030 Young Citizen

Marzena Nelken

Director, National Forum Orphan (KrajoweForum Orphan)

Milica Perić

President, Cystic Fibrosis Association Serbia

Prof. dr Mirna Đurić

Full Professor, Faculty of Medicine, Universityof Novi Sad / Head of the Department of Acutepneumopathy, Clinic for Obstructive Lung Diseases andAcute Pneumopathy, Institute for Pulmonary diseases ofVojvodina

Prof. dr Mojca Benčina

Department of Synthetic Biologyand Immunology, National Institute of Chemistry / Centrefor the Technologies of Gene and Cell Therapy (CTGCT)

Natalija Ilić

Patient Advocate, MPS Serbia

Nadežda Pejović

President, National Association of Phorphyrias Serbia

Olivera Jovović

President, NORBS

Raquel Castro

Social Policy and Initiatives Director,EURORDIS

Sandra Pavlović

Vice-President, NORBS

Simone Boselli

Public Affairs Director, EURORDIS

Tanja Zdolšek Draksler, PhD

Researcher and project manager,Jožef Stefan Institute / Founder of NGO IDefine Europe,

Vera Madžgalj

CEO, BELhospice