Caring for Rare 2025
The conference on rare diseases, “Caring for Rare,” is a unique event that has been organized to bring together representatives from various stakeholder groups throughout Central and Eastern Europe.
Follow our conference via livestream. Click on the links below.
Register for the "Caring for Rare" Conference
Don’t miss your chance to be a part of the 6th annual “Caring for Rare” conference, happening from September 11-12, 2025 in Belgrade and online. This event brings together leading experts, patient advocates, and stakeholders from across the Balkans and Central and Eastern Europe, all committed to improving the lives of those affected by rare diseases.
The topics that will be discussed at the conference concern the impact of caring for children with rare diseases on the family, the effect of rare diseases on siblings, how patients are changing the rare disease ecosystem, the importance of data for rare diseases, the specific challenges of late-onset rare diseases and aging, and the current status and opportunities in newborn screening for rare diseases.
Dive into the best moments from last year's "Caring for Rare" conference.
