Caring for Rare 2026

Caring for Rare 2026

The conference on rare diseases, “Caring for Rare,” is a unique event that has been organized to bring together representatives from various stakeholder groups throughout Central and Eastern Europe.

Caring for Rare 2026
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Watch Caring for Rare 2026 Live

Can’t join us in Belgrade? Follow Caring for Rare 2026 online on 3–4 September and be part of two days of discussions bringing together the rare disease community, healthcare professionals, experts and decision-makers from Serbia, the region and across Europe.

Choose a day below to watch the conference live.

This year’s conference will bring together experts, patient advocates and healthcare professionals to discuss mental health and sustainable leadership in patient organisations, the future of rare disease policy in Serbia, improving care and quality of life for people living with epidermolysis bullosa and pulmonary hypertension, holistic family support, innovative approaches to diagnosing undiagnosed rare diseases, improving access to diagnosis and care for people with X-linked hypophosphatemia, and the opportunities offered by artificial intelligence and digital tools for strengthening rare disease communities.

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Dive into the best moments from last year's "Caring for Rare" conference.

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