Meet our Speakers
Adéla Odrihocká
Co-Chair, Ehler-Danlos syndrome andhypermobility syndrome Czech Republic / PatientAdvocate, Rare Diseases Czech Republic (ČAVO)
Prof. dr Arsen Ristić
Head of Heart Failure Ward and Ass. Director, Department of Cardiology of the University Clinical Center of Serbia, Vice-Dean for Postgraduate Studies, Faculty of Medicine, University of Belgrade, Board Member, Heart Failure Association of the European Society of Cardiology President, Pulmonary Hypertension Society of Serbia,
Dr Bojan Trkulja
Director, INOVIA
Dr Branka Rakić
Team lead for the AI for Healthcare & Life Science group
Cynthia J. Tifft, MD, PhD,
Deputy Clinical Director, NationalHuman Genome Research Institute Director, PediatricUndiagnosed Diseases Program, National Institutes ofHealth)
Dorica Dan
President, Romanian National Alliance for RareDiseases / Vice-President, EURORDIS
Dr Dragana Atanasijević
Public Health Specialist, MS health services management Head of Health Technology Assessment Department Center for Analysis, Planning and Organization of Health Care Institute of Public Health of Serbia "Dr Milan Jovanovic Batut"
Djordje Djordjevic
Founder in Residence, Deep ScienceVentures
Elin Haf Davies
CEO / Founder, Aparito
Emina Hadžihasanović
President, Association of Rare Disease Patients from Bosnia and Herzegovina
Eva Pasaro
Vice-President, UNIAMO - Federazione ItalianaMalattie Rare"
Prof. dr Gordana Vilotijević Dautović
Associate Professor, Facultyof Medicine, University of Novi Sad / Director, PeadiaticClinic, Institute for Child and Youth Health Care
Ivana Hrastar
Social Worker, Rare Diseases Croatia
Prof. dr Isidora Jarić
Full Professor, Faculty of Philosophy, University of Belgrade
Jana Sotirović
Patient Advocate, Cystic Fibrosis Association Serbia
Jordi Cruz
Director Spanish MPS-Lysosomal Association and Founder of the La Casa de Sofía Center
Julian Delaye
Patient Engagement Manager - HTA,EURORDIS / Rare2030 Young Citizen
Marzena Nelken
Director, National Forum Orphan (KrajoweForum Orphan)
Milica Perić
President, Cystic Fibrosis Association Serbia
Prof. dr Mirna Đurić
Full Professor, Faculty of Medicine, Universityof Novi Sad / Head of the Department of Acutepneumopathy, Clinic for Obstructive Lung Diseases andAcute Pneumopathy, Institute for Pulmonary diseases ofVojvodina
Prof. dr Mojca Benčina
Department of Synthetic Biologyand Immunology, National Institute of Chemistry / Centrefor the Technologies of Gene and Cell Therapy (CTGCT)
Natalija Ilić
Patient Advocate, MPS Serbia
Nadežda Pejović
President, National Association of Phorphyrias Serbia
Olivera Jovović
President, NORBS
Raquel Castro
Social Policy and Initiatives Director,EURORDIS
Sandra Pavlović
Vice-President, NORBS
Simone Boselli
Public Affairs Director, EURORDIS
Tanja Zdolšek Draksler, PhD
Researcher and project manager,Jožef Stefan Institute / Founder of NGO IDefine Europe,
Vera Madžgalj
CEO, BELhospice