2026
Meet our Speakers
dr Maja Stojiljkovic
Institute of Molecular Genetics and Genetic Engineering, IMGGE (Belgrade, Serbia)
Vladan Žikić
President, NORBS
Danica Vučić
Psychologist, NORBS Helpline
Vesna Aleksovska
Patient advocate, Systemic NLP coach
Ida Mirković Knaus
Patient advocate; Associate, Rare Diseases Croatia; RDI Youth Leader
Maria Georgieva
Debra Bulgaria
Mateja Krznar
MSc in Nursing, DEBRA Croatia
Mirza Kahriman
Bachelor of Psychology, Entrepreneur, President of DEBRA Bosnia and Herzegovina, Person Living with Recessive Dystrophic Epidermolysis Bullosa (RDEB)
Ljiljana Skakić
Rare Diseases Association of the Republic of Srpska, President of the Assembly
Jovan Lalošević
MD, PhD, Dermatovenereology specialist at Clinic of Dermatology and venereology, University Clinical Center of Serbia
Snežana Janošević
President, DEBRA Serbia
Danijela Pešić
President, PH Serbia
Vesna Vujičić
President, 22q exYU
Linda E. Campbell
BSc (Hons), M.Clin.Psych, PhD
Director, 22qMinded;
Clinical Associate Professor, University of Newcastle
Ivana Milisav
Graduate Special Education Teacher – Deaf Education Specialist
Founder of the Inclusive Educational Center “Our Learning Corner”
Professional Associate at the NGO “Hanina Nada”
Marija Milovanović
President, PODUFAH
Doc Prim dr Marko Stojanović
Endocrinologist, Clinic for Endocrinology, Diabetes and Metabolic Diseases, University Hospital of Serbia /
Faculty of Medicine, University of Belgrade
Biljana Jovanović
Gaucher Disease Serbia
Sara Bojanić
Europa Donna Serbia – Serbian Breast Cancer Forum
Breanna Winger
Consultant Children’s Orthopaedic Surgeon, Sunderland Royal Hospital
Angelica Maria Delgado-Vega
Department of Clinical Genetics and Genomics, Karolinska University Hospital; Department of Molecular Medicine and Surgery, Karolinska Institute, Stockholm, Sweden
Ugur Ozbek
Izmir Biomedicine and Genome Center, Izmir, Türkiye
Maja Djordjevic Milosevic
Institute for Mother and Child Healthcare of Serbia “Dr Vukan Cupic”; Faculty of Medicine, University of Belgrade, Belgrade, Serbia
Kristel Klaassen Ljubicic
Institute of Molecular Genetics and Genetic Engineering, University of Belgrade, Belgrade, Serbia
Gregor Cuzak
ZOPS - Zveza organizacij pacientov Slovenije & CTGCT - Centre for the technologies of gene and cell therapy
Tamara Đukić
EB patient advocate, Montenegro
Ass. dr Slađana Radosavljević
Internal medicine specialist, Institute for Pulmonary Diseases of Vojvodina
Ivana Veljić
MD, PhD, Clinical Assistent, Faculty of Medicine, University of Belgrade / Internal medicine specialist, Clinic of Cardiology, University Clinical Center of Serbia
Ivan Stanković
MD, PhD, Head, Dpt of Cardiology, Clinical Hospital Centre Zemun / Assistant Professor, Faculty of Medicine, University of Belgrade
Tatjana Prijić
Associate, Commissioner for the Protection of Equality
Prof. dr Ivana Novaković
Institute for Human Genetics, Faculty of Medicine, University of Belgrade / President of the RFZO Commission for rare diseases
Prof. dr Goran Čuturilo
Associated Professor of Pediatrics, Faculty of Medicine, University of Belgrade / Head of Department of Clinical Genetics at the University Children’s Hospital / President, Republic Expert Commission for rare diseases